[O33] 神経筋疾患 4

[O33-4] Questionnaire survey on disease notification among patients with Duchenne muscular dystrophy and their parents

^○Mariko Yagi¹, Ryosuke Bo², Hiroyuki Awano³, Tomoko Lee⁴, Minae Fukui⁵, Junko Honda⁶, Yasuhiro Takeshima⁴ (1.Department of Childhood Development and Education, Faculty of Human Sciences, Konan Women's University, Kobe, Japan, 2.Department of Pediatrics, Kobe University Graduate School of Medicine, Kobe, Japan, 3.Organization for Research Initiative and Promotion, Tottori University, Yonago, Japan, 4.Department of Pediatrics, Hyogo Medical University, Nishinomiya, Japan, 5.School of Nursing, Mukogawa Women's University, Nishinomiya, Japan, 6.Research Institute of Nursing Care for People and Community, University of Hyogo, Akashi, Japan)