JCK-AP session 8 (III-JCKAP8)
ACHD

[III-JCKAP8-4] Report from the Research Group of the Japanese Ministry of Health, Labour and Welfare

^○Isao Shiraishi¹, Hideo Ohuchi¹, Kei Inai², Atsushi Yao³, Ryota Ochiai⁴, Yoshihide Mitani⁵, Sachiko Kido⁶, Takashi Higaki⁷, Hiroyuki Yamagishi⁸, Teiji Akagi⁹ (1.National Cerebral and Cardiovascular Center, Osaka, 2.Tokyo Women's Medical University, Tokyo, 3.Tokyo University, Tokyo, 4.Yokohama City University Hospital, Kanagawa, 5.Mie University Hospital, Mie, 6.Hyogo Children's Hospital, Hyogo, 7.Ehime University Hospital, Ehime, 8.Keio University School of Medicine, Tokyo, 9.Okayama University Hospital, Okayama )

Keywords:transition, adult congenital heart disease, research roup

This study aims not only to improve the quality of life of patients with congenital heart disease (CHD) so that they can receive appropriate transitional care and have a good long-term prognosis throughout their lives. We will continue various activities in collaboration with related academic societies and patient groups. Specifically, we will conduct a nationwide survey of new patients with CHD, establish diagnostic criteria and treatment guidelines, support the establishment of a lifelong training program for pediatric cardiovascular surgeons, develop the infrastructure for digitized school ECG screening, establish seamless transitional care, conduct research on patients who have dropped out of care, and research on resuming medical care. The goals are to implement various medical measures to improve the long-term prognosis and quality of life of patients, including the establishment of diagnostic criteria and research into treatment and prevention methods for liver cancer, the development of personal health records using smart phones, the provision of information to patients through a website, support for the independence of adolescent patients, and support for schooling and employment.