The current situation and needs of rare disease registries in Japan

Harumasa Nakamura

Presentation information

English Poster Session

[Pe-020] Miscellaneous (Clinical research3)

Wed. May 22, 2019 5:20 PM - 6:35 PM Poster Exhibition (Osaka International Convention Center 3F Event Hall)

Chair:Hirohisa Watanabe(Department of Neurology & Neuroscience, Fujita Health University) Commentator:Shinsuke Fujioka(Department of Neurology)

[Pe-020-4] The current situation and needs of rare disease registries in Japan

Harumasa Nakamura¹, Fumi Takeuchi¹, Yoshihiko Furusawa², Izumi Yamaguchi⁴, Yoshihisa Yamano³, Fumihiko Matsuda⁴ (1.Translational medical center, National center of neurology and psychiatry, Japan, 2.Department of Neurology, National Center Hospital, National Center of Neurology and Psychiatry, 3.Department of Advanced Medical Innovation, St. Marianna University Graduate School of Medicine, 4.Center for Genomic Medicine, Graduate School of Medicine, Kyoto University)

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