New Guideline
Fri. May 21, 2021 8:00 AM - 9:00 AM Room 01 (ICC Kyoto 1F Main Hall)
Chair：Matsumura Tsuyoshi(Department of Neurology, National Hospital Organization Osaka Toneyama Medical Center),Takahashi Masanori(Clinical Neurophysiology, Osaka University Graduate School of Medicine)
筋強直性ジストロフィーは、骨格筋に加え全身の諸臓器に障害を来す多臓器疾患です。中枢神経障害も伴うため、症状の自覚・訴えが乏しく、適切な医療管理の導入・維持が困難で、デュシェンヌ型筋ジストロフィーなどと比べて生命予後の改善が乏しいのが実情です。新規治療薬の開発も進みつつありますが、標準的医療の実践は、治療開発の上でも重要な課題です。エビデンスの乏しい領域ですが、ガイドラインの発行により、神経内科を核とした集学的医療の構築が進むこと、ガイドライン作成過程で明らかとなった課題について共同して取り組むことで医療レベルの向上と新たなエビデンス構築につながることを期待しています。本シンポジウムでは、ガイドライン発刊前の医療実態、合併症管理などに焦点を当て、現状の問題点や解決に向けての方向性を共有できる機会にしたいと考えます。
○Satoshi Kuru (Dept.of neurology, Suzuka National Hospital, Japan)
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○Hideki Itoh1, Takashi Hisamatsu2, Takuhisa Tamura3, Kazuhiko Segawa4, Toshiaki Takahashi5, Hiroto Takada6, Satoshi Kuru7, Chizu Wada8, Mikiya Suzuki3, Shugo Suwazono9, Shingo Sasaki10, Ken Okumura11, Minoru Horie12, Masanori Takahashi13, Tsuyoshi Matsumura14 (1.Division of Patient Safety, Hiroshima University Hospital, Japan, 2.Department of Public Health, Okayama University Graduate School of Medicine, Dentistry, and Pharmaceutical Sciences, 3.Department of Neurology, National Hospital Organization, Higashisaitama National Hospital, 4.Department of Cardiology, National Center Hospital, National Center of Neurology and Psychiatry, 5.Department of Neurology, National Hospital Organization, Sendai-Nishitaga Hospital, 6.Department of Neurology, National Hospital Organization, Aomori National Hospital, 7.Department of Neurology, National Hospital Organization, Suzuka National Hospital, 8.Department of Neurology, National Hospital Organization, Akita National Hospital, 9.Division of Neurology and Center for Clinical Neuroscience, National Hospital Organization, Okinawa National Hospital, 10.Department of Cardiology and Nephrology, Hirosaki University Graduate School of Medicine, 11.Advanced Arrhythmia Therapeutic Branch, Division of Cardiology, Saiseikai Kumamoto Hospital Cardiovascular Center, 12.Department of Cardiovascular Medicine, Shiga University of Medical Science, 13.Department of Clinical Laboratory and Biomedical Sciences, Osaka University Graduate School of Medicine, 14.Department of Neurology, National Hospital Organization, Osaka Toneyama Medical Center)
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○Michio Kobayashi (Department of Neurology, Akita National Hospital, Japan)
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○Keiko Ishigaki (Department of Pediatrics, Tokyo Women's Medical University, School of Medicine, Japan)
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