Japan Association for Medical Informatics

[2-H-3-OP11-2] Reducing Patient Privacy Concerns via Access Control to EHRs

Kensuke Morris1, Goshiro Yamamoto2, Shosuke Ohtera2, Michi Sakai2, Shusuke Hiragi1,2, Kazuya Okamoto1,2, Osamu Sugiyama4, Naoto Kume3, Masayuki Nambu4, Tomohiro Kuroda1,2 (1.Department of Social Informatics, Graduate School of Informatics, Kyoto University, 2.Division of Medical Information Technology and Administration Planning, Kyoto University Hospital, 3.Department of Electronic Health Record, Graduate School of Medicine, Kyoto University, 4.Preemptive Medicine & Lifestyle-Related Disease Research Center, Kyoto University Hospital)

Many countries including Japan are facing the challenge of obtaining meaningful use of the Electronic Health Record (EHR) systems on a national level partly due to privacy concerns of patients. These concerns are related to who is accessing the medical record, when the access taking place is, why the access taking place is, where the access occurring is and what part of the medical record is being accessed. In order to reduce these concerns, we focus on increasing control and awareness of patients. The purpose of our research is to find a suitable approach for access control that can reduce the privacy concerns of patients for both conscious and unconscious situations. We designed an approach that can provide availability of patient’s clinical data to doctors via control of the patient. In the case where the patient is unconscious (not in a mental state to make their medical decisions), we introduced an idea that our system includes a representative who can grant access to the requesting doctor instead of the patient. In this paper, we show how the patient or their representative can control access to the patient’s medical record. To validate the feasibility of our system design, we made a questionnaire to survey members of the Japanese society to get feedback about their privacy concerns as patients and their willingness to include their representative in controlling access to their medical record when they are unconscious. We will report the results of the survey and discuss its suitability from several aspects.