[PI-1-2] Psychometric Properties of the Cerebral Palsy Quality of Life Questionnaire-for Adolescents (CP QOL-Teen) –Taiwan
Purpose: Cerebral palsy (CP), a permanent disorder of the development of movement and posture, often causes children’s physical limitations and cognitive impairment, affecting their participation in home, school, and community, thereby compromising their quality of life. Measuring health-related quality of life in people with cerebral palsy (CP) is essential to assess the impact of interventions and inform policies that best improve people’s lives. The aim of the study is to examine the psychometric properties of a translated and cross-culturally adapted version of the Cerebral Palsy Quality of Life Questionnaire-Teen in Taiwan (CP QOL-Teen (TW).
Methods: The study was conducted in two phases. In Phase 1, the CPQOL-Teen was cross-culturally translated and adapted into Mandarin Chinese following the four steps, i.e., 1) forward translation of the CPQOL-Teen by a committee according to standardized procedures, 2) expert evaluation of the translation, 3) blind backward-translation, and 4) pilot testing and cognitive interviewing. The Chinese version of the CPQOL-Teen (TW) was then used in Phase 2 to evaluate its psychometric properties. In Phase 2, 113 adolescents with CP ages 13 to 18 (mean age = 15.6 yr, SD = 1.5, 75 males, 38 females) and their caregivers were asked to complete self-report and proxy-report CP QoL-Teen (TW) and the WHOQOL BREF Taiwan.
Results: The CPQOL-Teen (TW) demonstrated excellent internal consistency (Cronbach’s αs = 0.83 -0.92 for the self-report version; Cronbach’s αs = 0.76- 0.92 for the proxy-report version), moderate to excellent test-retest reliability for the self-report (ICCs= 0.49- 0.96), and weak to excellent test-retest reliability for proxy-report version (ICCs= 0.27 - 0.92). Most item-subscale correlations were moderate to excellent (rs = 0.42-0.93) and were higher between items and the subscales they belong to than with other subscales. Exploratory factor analysis of the CPQOL-Teen (TW) resulted in a two-factor pattern (General well-being and Family well-being) that was different from the seven domains of the original English version. The disparity may be due to the different versions used. The self-report version was used for analysis in our study, whereas Davis et al.’s study used the proxy-report version. Concurrent validity with the WHOQOL-BREF Taiwan version showed weak to moderate (rs = 0.23-0.64) subscales correlations. Agreement in the perception of QOL between the adolescents and primary caregivers was moderate (ICCs = 0.53-0.70), which is consistent with the English version.
Conclusions: Results of the study suggest that the CPQOL-Teen (TW) is a reliable and valid instrument for evaluating adolescents with CP’s health-related QoL in Taiwan. Agreement in the perception of QOL was moderate between adolescents with CP and their primary caregivers.
Methods: The study was conducted in two phases. In Phase 1, the CPQOL-Teen was cross-culturally translated and adapted into Mandarin Chinese following the four steps, i.e., 1) forward translation of the CPQOL-Teen by a committee according to standardized procedures, 2) expert evaluation of the translation, 3) blind backward-translation, and 4) pilot testing and cognitive interviewing. The Chinese version of the CPQOL-Teen (TW) was then used in Phase 2 to evaluate its psychometric properties. In Phase 2, 113 adolescents with CP ages 13 to 18 (mean age = 15.6 yr, SD = 1.5, 75 males, 38 females) and their caregivers were asked to complete self-report and proxy-report CP QoL-Teen (TW) and the WHOQOL BREF Taiwan.
Results: The CPQOL-Teen (TW) demonstrated excellent internal consistency (Cronbach’s αs = 0.83 -0.92 for the self-report version; Cronbach’s αs = 0.76- 0.92 for the proxy-report version), moderate to excellent test-retest reliability for the self-report (ICCs= 0.49- 0.96), and weak to excellent test-retest reliability for proxy-report version (ICCs= 0.27 - 0.92). Most item-subscale correlations were moderate to excellent (rs = 0.42-0.93) and were higher between items and the subscales they belong to than with other subscales. Exploratory factor analysis of the CPQOL-Teen (TW) resulted in a two-factor pattern (General well-being and Family well-being) that was different from the seven domains of the original English version. The disparity may be due to the different versions used. The self-report version was used for analysis in our study, whereas Davis et al.’s study used the proxy-report version. Concurrent validity with the WHOQOL-BREF Taiwan version showed weak to moderate (rs = 0.23-0.64) subscales correlations. Agreement in the perception of QOL between the adolescents and primary caregivers was moderate (ICCs = 0.53-0.70), which is consistent with the English version.
Conclusions: Results of the study suggest that the CPQOL-Teen (TW) is a reliable and valid instrument for evaluating adolescents with CP’s health-related QoL in Taiwan. Agreement in the perception of QOL was moderate between adolescents with CP and their primary caregivers.