[P1] 遺伝・先天異常

[P1-2] Experiences of advance care planning in a case of severe infantile systemic hyalinosis

^○Kazuya Itomi^1,4, Kato Mihoko^2,4, Kawamura Masayo^3,4, Horita Harihito¹ (1.Department of Neurology, Aichi Children's Health and Medical Center, Obu, Japan, 2.Department of Neurosurgery, Aichi Children's Health and Medical Center, Obu, Japan, 3.Department of Child and Adolescent Psychiatry, Aichi Children's Health and Medical Center, Obu, Japan, 4.Working Group for Promotion of Precious Promise Sharing, Aichi Children's Health and Medical Center, Obu, Japan)