[P3-119] State of home mechanical ventilation in the institutes specializing in muscular dystrophy treatment in Japan
[Introduction] Home mechanical ventilation (HMV) therapy for patients with muscular dystrophy started in 1990s in Japan. We have collected the information of patients who have undertaken HMV in the 26 National Hospital Organization institutes specializing in muscular dystrophy treatment and National Center of Neurology and Psychiatry since 2000. We analyzed these data to clarify the present situation of HMV in Japan.
[Methods] We investigated the record from 2000 through 2015. We counted the total number of patients 1) who have undertaken HMV, 2) with non-invasive ventilation and 3) with tracheostomy from 2000, the number of patients 4) with Duchenne type, 5) with other type, 6) with other neuromuscular disease from 2004 on October 1 of each year. Further we calculated the rate of patients 7) who entirely depend on ventilator, and who have 8) resuscitation bag of each year from 2004.
[Results] Twenty one to twenty seven institutes replied. The number of 1)~3) in 2000, the number of 4)~6) and the rate of 7), 8) in 2004 were 1) 252, 2) 168, 3) 78, 4) 149, 5) 68, 6) 61, 7) 45.8%, and 8) 68.3%. And those of 1)~8) in 2015 were 1) 1191, 2) 766, 3) 315, 4) 437, 5) 404, 6) 350, 7) 51.4%,and 8) 77.1%.
[Conclusions] Each number related to HMV has been increasing. Half of HMV patients are entirely dependent on ventilator. Progress of portable type ventilator has enabled the severe neuromuscular patients to live in their own home. Thorough risk management for HMV is required
[Methods] We investigated the record from 2000 through 2015. We counted the total number of patients 1) who have undertaken HMV, 2) with non-invasive ventilation and 3) with tracheostomy from 2000, the number of patients 4) with Duchenne type, 5) with other type, 6) with other neuromuscular disease from 2004 on October 1 of each year. Further we calculated the rate of patients 7) who entirely depend on ventilator, and who have 8) resuscitation bag of each year from 2004.
[Results] Twenty one to twenty seven institutes replied. The number of 1)~3) in 2000, the number of 4)~6) and the rate of 7), 8) in 2004 were 1) 252, 2) 168, 3) 78, 4) 149, 5) 68, 6) 61, 7) 45.8%, and 8) 68.3%. And those of 1)~8) in 2015 were 1) 1191, 2) 766, 3) 315, 4) 437, 5) 404, 6) 350, 7) 51.4%,and 8) 77.1%.
[Conclusions] Each number related to HMV has been increasing. Half of HMV patients are entirely dependent on ventilator. Progress of portable type ventilator has enabled the severe neuromuscular patients to live in their own home. Thorough risk management for HMV is required