[P3-193] Parenting stress and depressing mood in parents of Rett syndrome child.
[Background] Patients with Rett syndrome presented characteristic regression in communication and hand skill, eventually to intellectual and physical disability. They showed improvement both intellectually and physically due to caregivers’ special care as well as intensive medical rehabilitation and music therapy. However, caring patients of Rett syndrome is a life-long challenging task, the psychological well-being of caregivers impacted on the long-term care quality in patients with Rett syndrome. We investigated the influence of music therapy on parents’ mental health in this study.
[Methods]We acquired questionnaire of parenting stress index- short form (PSI/SF) from caregivers with Rett syndrome kids who received medical follow-up at Kaohsiung Chang Memorial Hospital. Patients in the experiment group received the 120-minute per session, twice a week for 12 weeks. The sessions included initial singing, instruments playing, body movement in rhythm, whisper/quite time, and closure, which based on the principles of auditory stimuli, auditory comprehension, and auditory integration by music. Patients in the control group did not participate in the music therapy program.
[Results]Nineteen parents were divided into control group (n=9) and experiment group (n=11). Caregivers in the experiment group had significant lower post-test parental distress subscale after music therapy(pre-31.36±9.16 v.s post-27.73±8.63, p<0.05).In addition, one caregiver had critical high level of parental stress (total stress score > 114) before music therapy, and her parental distress score got decreased after music therapy.
[Conclusion] For parents of Rett syndrome patient, parenting stress is an important issue. Early detection and intervention to reduce parenting stress may avoid parental dysfunction. Music therapy may be a potential interventional for relieving parenting stress.
[Methods]We acquired questionnaire of parenting stress index- short form (PSI/SF) from caregivers with Rett syndrome kids who received medical follow-up at Kaohsiung Chang Memorial Hospital. Patients in the experiment group received the 120-minute per session, twice a week for 12 weeks. The sessions included initial singing, instruments playing, body movement in rhythm, whisper/quite time, and closure, which based on the principles of auditory stimuli, auditory comprehension, and auditory integration by music. Patients in the control group did not participate in the music therapy program.
[Results]Nineteen parents were divided into control group (n=9) and experiment group (n=11). Caregivers in the experiment group had significant lower post-test parental distress subscale after music therapy(pre-31.36±9.16 v.s post-27.73±8.63, p<0.05).In addition, one caregiver had critical high level of parental stress (total stress score > 114) before music therapy, and her parental distress score got decreased after music therapy.
[Conclusion] For parents of Rett syndrome patient, parenting stress is an important issue. Early detection and intervention to reduce parenting stress may avoid parental dysfunction. Music therapy may be a potential interventional for relieving parenting stress.